Everyone has them, those symptoms that remind you that maybe your meds aren’t optimized and something is off. But symptoms are tricky and sometimes it’s like chasing your tail trying to figure them out. This post is not about specific symptoms because quite honestly thyroid symptoms are crazy and there are so many. I want to explore what happens when we put our symptoms in a category of hyper or hypo, too much or little medication, high TSH or low TSH, however you define your feelings of being off.
Symptoms
Every day I see posts in Facebook groups from people who are seeking help with their thyroid medication dosing. Usually they have residual symptoms and don’t believe their treatment to be adequate. Often they are told by another group member to get a new doctor. Is it even possible to get a new doctor in their area? Do they have the finances to seek private care? Is getting a new doctor the only solution?
Wouldn’t it be nice if it were simple? It’s not. I read paper after paper looking for the Holy Grail of my magic thyroid hormone dose, and I’m telling you, it’s not there. Why? Because when the system is broken in the case of thyroid removal or death, and the complex interaction between TSH, FT4 and FT3 is disjointed.
My commitment to you here is honesty. What I know is that when we’re feeling alone with our darkest thoughts, we’re not always sure someone else has felt the way we do. I think we’re more similar than we are different. Maybe my truth will reassure you that you are definitely not alone.
While my fear list may not be in order of worst to least fearful, there is a definite “these are the big scary ones”, and “these are the lesser fears. My bet is that you haven’t come away from whatever part of this journey you’re on without collecting a few of your own along the way.
This topic is a testy one. Here are six questions with my thoughts about TSH. Let’s examine TSH – experiences, thoughts, beliefs, and biases. Please feel free to add your own input in the comments section!
Just the title of this mysterious board certified endocrinologist’s website was enough to make me dive in and read every blog post and listen to every podcast he has done. “HD” as he calls himself has some strong opinions about today’s thyroid treatment and the overall mythical nature of common ideas that circulate on the internet.
I have just discovered Dr. Toft and will continue to update this post as I learn more about him.
I first read about him on the Health Unlocked Thyroid UK group. Everyone in that group was up in arms because he has conflicting ideas in regards to TSH suppression. He feels that it is acceptable to have a below range (very suppressed) TSH on T4 mono therapy, but when on T4/T3 combo therapy it is important to stay within the accepted laboratory range. As you can imagine, his statements are causing a lot of opposing opinions.
The subject of this post hits very close to home for me. Apparently it does for a lot of us without a thyroid because it is a very popular topic in thyroid groups online. The mental health aspects after thyroid loss is profound. For me it is the first hint that my levels are off.
Fatigue has played larger and lesser roles in the course of this hypothyroidism experience but I can always feel its breath on the back of my neck.
For extended periods of time it permeated every aspect of my life. Working through strategies to manage around it and have a life in spite of its grip, I found ways to cope.
Hi, it’s me the queen of tinnitus. This lovely ringing in my ears has been with me since my complete thyroidectomy 16 years ago. Sometimes it’s deafening, other times just a low hum but it’s always there. Ringing, whooshing, buzzing, full feeling, noise sensitivity and even hearing loss can all be caused by thyroid hormone imbalance. I think I have had them all at various times over the years. Let’s break this down as I try to understand where all the noise is coming from and maybe you can relate to some of my ear issues.